Monday 20 August 2012

"I was expecting a much bigger needle..."

Marcus came with us to the hospital today....thought we'd show him where Daddy gets tortured!! He seemed a little disillusioned and let down by the whole experience.....'I was expecting a much bigger needle'. No screaming or blood splattering on the walls...what kind of show are they running here!! Our good parenting techniques have clearly worked well, with copious amounts  of compassion and empathy on full display.

You know what.....he was great!! Important to recognise that this is the same boy who came up and put his arm around my shoulder the other day, coz he could see that I was a bit down...That meant alot....that meant an incredible amount!




That said, after coming to terms with the lack of gore, he did proceed to entertain himself trying to make Dad as uncomfortable as possible, experimenting on the potential for breaking human bones using only a firm mattress and electrical bed motors.


My consultant was very positive about my paraprotein levels. Having come in to see me, (and following the now customary golf lesson) he confirmed that progress was ahead of schedule and was very happy that I'm continuing to react well to treatment, not only in the reduced paraprotein levels, but with my vital blood counts holding up and manageable side effects. One more injection on Thursday, then thats cycle four ticked off!!






Friday 17 August 2012

Sverige

It's been a while since my last post, so thought the least I could do was inform you that I'm still alive and kicking!

Having had a break from the chemo last week, we took the opportunity to spend a few days over with ‘me bruv’ and family in Sweden. So, with invalid travel insurance in my back pocket, we flew out to Gothenburg on Tuesday. It was great to see them all again, and we spent the week experiencing that perfect blend of relaxation, mixed with table tennis, sailing, fishing, baby crab massacring and Liseberg.



To add the final touches to an already fantastic week, family Hoban were very fortunate to get hold of tickets to the Olympic handball final, Sweden v France, on Sunday. What a superb day, and such a surprise and boost to be up in the Olympic Park on the last day of the Olympics. Having spent four years in Sweden following RIK (the Gothenburg handball team), I could even pretend to understood the rules!

Though it lacked the bikinis and shocking flesh exposure of the beach volleyball, it made up for it with excitement, drama, sweat (mine) and tears (Lens), the Swedish team narrowly missing out on gold by one goal...21-22.






                                   Spotted this famous couple in their baby grows!


In keeping with the Olympic theme, having got back home and turned on the TV to see the closing ceremony, there was Mo Farah appearing in an old episode of ' The Cube' (important to point out at this stage that I'm not a fan of the programme). Deciding to waste 20 minutes of my life watching how he got on, I now know that Mo Farah was the first person to 'beat the cube'. Sod the two Olympic gold medals he's just won, beating the cube is clearly the true measure of dedication and perseverance!!

Anyway, back on the chemo and steroids this week, and a return to my "menopausal" state, with the associated sleepless nights, hot flushes, weight gain etc. Still, with the continued support of my wife (she called me ‘Brownie’ last night, the name of Marcus’ hamster, I presume in honour of my gradual development of hamster cheeks), I know this treatment won’t result in any deep rooted psychological problems!!

And finally, hot off the press, I’ve just been given my paraprotein levels off the back of cycle three. Fab news, the level continues to fall and is now down to 12, exactly half the level I had at the start of all this. There is clearly a gradual ‘plateauing’ of my paraprotein level, but this is considered a normal reaction to induction treatment. Real positive news at the end of two great weeks!!


Saturday 4 August 2012

Rubbish Night

Well, what a rubbish night that was!! Struggled to sleep, so at 4:00am thought I'd put on the 'Olympics Tonight' programme recorded earlier....what a mistake!! Now, call me old fashioned, but I thought the whole idea of a highlights programme was to actually see the days highlights.....oh how wrong I was....soppy traditionalist clearly. 80% of the programme was spent in the studio with Gaby Logan having random chats with ex olympians (not that I mind our Gabs), the other 20% covered various slow motion, close up, randomly sequenced, reverse angle, fish bowl, sepia shots of the actual events. To top it all, every highlight was preceeded with our Gabs commenting 'we join the race in the later stages'.....yeh, when the result was already clear!! Just tell us the result next time and don't bother with any highlights....much quicker. Programme turned off at 4:30, eventually calmed down around 5:30am.

Oh well.....composure recovered, I'm now looking forward to 'joining the race in the later stages' of the mens 100 meters in tonights highlights programme!!

Friday 3 August 2012

Beach Volleyball

Had my final injection of cycle 3 yesterday and now looking forward to ten days off treatment. My consultant popped in for a brief review and continues to be happy with the progress being made, with all my vital blood counts holding up well to the treatment. Next major milestone will be the paraprotein count at the start of cycle 4. We're hoping for a figure around 12 or below at that stage, representing half my level at the start of the chemotherapy. That would provide a positive indicator that the Velcade is continuing to reduce the myeloma cells, so figures crossed on that one.

So, if drugs and positive attitude can't get me below that level, the Russian ladies beach volleyball team stand a very good chance of doing the trick. I was very fortunate to be given two tickets for the beach volleyball from some good friends of mine (so, so appreciated), who thought a bit of bikini therapy might just tip the balance, and who was I to disagree with such logical, insightful thinking. What a great night it was, fantastic atmosphere, Benny Hill theme tune blasting out over the loud speakers (you wouldn't get that at the Velodrome), with the London skyline providing the perfect backdrop.




Now clearly I'm not going the lower the tone of this blog by including some cheap photos of exposed athletic flesh.......so here it goes:




.....but only the one......oh, and this one, on full zoom in case the above missed clarity (I was obviously trying to work out who the No.1 Russian player was...nothing more sinister).




....and to save the day and redress the balance, the USA mens team complete with goaties.



 and thigh!!



To add the final touches to my Olympic experience, I decided not to sit in traffic for 8 hours in an attempt to get to work and, having taken a days leave, took a walk into into Kingston to watch the mens time trails. Great atmosphere again, loads of people out in support, got to see Wiggo and Froome, no Benny Hill theme tunes, nor exposure of thigh, but many prominant veins on riders forearms was noted. Clearly they'd been doing a bit of preparation on the treadmill for this competition!!









Finally, I like to think this blog can also offer a bit of worldly advise. So, having just phoned some companies to get travel insurance quotes, here's a wise word from your Uncle Patrick. If you're thinking of going on holiday, do so before you decide to pick up a incurable cancer.....the premiums are a shock to the system and appear to cover the full list price of the aircraft, not just the flight!!